Category Archives: action

Can I have a do-over?

Or at least that’s what I text my friend the other day.

These last….six months have been relentless. I haven’t been able to catch my breath from one moment to the next. And that has been exhausting.

For someone who requires stability and routine in order to function from one day to the next….the last few months have left me spinning. My very own waltzers have been increasing in momentum….my homing beacon isn’t only just switched off…it’s in a different universe from what I can tell…my swans wings have been flapping almost as hard as my feet have been paddling and still…..the war of attrition has sucked me back in.

I’ve changed jobs, to one that whilst…requires less hours…it requires much more head space and much more mask wearing. I’m on my own for great swathes of the day. That’s a long time to be with my own thoughts.

My very own Everest has beaten me for now. I could see the summit…and then I slipped back too far to reach it this year.

Childcare has been a nightmare, I get that having kids and going to work was my choice. And I did it for all the right reasons. But its a minefield. And mines are detonating everywhere I turn.

There’s been a bereavement…which I found out about…by accident it would appear. Actually there is no appear about it. That’s exactly how I found out.

I’ve had to meet loads of new people. In fact its a prerequisite of my job – forming relationships. The irony of someone like me having to form and build relationships for a job. That’s hilarious.

And perhaps most concerning….I’ve come off my antidepressant.

Not my anti psychotic. We increased the dose of that and removed the antidepressant. At first it was accidentally. In the maelstrom of changing jobs and all the drama that ensued with the big green kitchen company….I forgot to take it. My sleep didn’t change, I woke up in a good mood….so I ran with it…..

The first month was amazing. Everything was fantastic. No withdrawal….no sleep issues…I was happier and more content…awesome right?

Then the second month happened…the nightmares came back, the insomnia came back. I was so tired I cried in a car park because someone snapped at me…I felt physically ill with exhaustion. My bones hurt. I was so tired….but I just couldn’t sleep….and when I did sleep….back to the beginning…back to the violence of past relationships, back to seeing my girls die before my eyes….back to waking up screaming and drenched in sweat…there was just no respite.

Then the third month came….the nightmares are less. I still dream. I still have exhausting dreams, but the antipsychs are keeping me….well sane I guess. My sleep pattern is some bizarre version of fucked up. I’ll sleep for 10 hours one night and not at all two nights later. I’m assuming it’s just my body trying to work out its own thing….I’ll ride it out. I don’t want to go back on the anti depressants.

Not because I have anything against them….but because…the benefits of not being on them are now outweighing the benefits of taking them. And thats part of taking control of my own health….learning when I need the boost and when I can manage on my own….

But in saying this….it’s not been all bad.

It’s kept me on my voyage of learning who I am.

I swapped jobs to another role within an international company…and I love it. It pushes me, it engages me…this could be a career. So I’m passionate about it….the big green company job is another post entirely. And one I will be writing, and one I will tag them in. Because that was a soulless,destroying company and hell will rain down on the heads of the management before I’m through with them…..

I’ve maintained some good relationships with people I thought I’d lose over the natural course of time. But now it’s like, because we don’t have work binding us together…we have to make the effort….and that’s nice. It’s reinforcing the lack of scarlet in me at the moment.

The bereavement…I genuinely…I don’t care. And thats not my BPD. It sounds horrible, but the woman who died….she hadn’t engaged with me for years prior to that, and her son – my father, well he was no better. So finding out by accident was a bit cruel, but hey….so what?

 

So overall, no I don’t want a do over. I’ve learnt lots about myself in the last 6 months. I’ve learnt how resillient I am. How strong I am. How I can adapt as needed.

I’ve learnt that actually, I really am in control of my BPD. And that, that’s amazing. Thats real progress. I really love some aspects of my mental health illness… I still love the empathy I have because of it. I really love how it means I can help people. I love the way I see sounds and taste words. I’m fascinated by the way my mind works.

 

I hate the way I don’t have that much control over my emotions. So I’ve taught myself to control how I react to my emotions. Thats a life skill, even neurotypical people struggle with.

 

So fuck it, overall…I’m still winning this battle. Or at least…I’m keeping from being overthrown. And for now. That’ll do.

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BPD and me…my new realisations.

I appear to be writing more frequently about my BPD at the minute. I’m not having a relapse, but I am acutely aware of it at the moment.

I’m tentatively telling people about it again. Mainly because I’ve been seeing flashes of the scarlet me coming through. But also, because every so often I gain a new level of insight. It’s like all the time my subconscious is working on it, trying to unravel the thread and help me. Help me to know just exactly what is going on inside my head.

Recently I became aware of how even missing a single dose of quetiapine will spark my absurd behaviours and brain whimsy.

My BPD causes me to suffer with dissociation. This means that I have a constant “out of body” experience on my life. Like I’m looking down on whats going on, but I’m not really there. The quetiapine and mirtazpine mean that for the last 18 months that hasn’t happened. Well. Not as bad as it was. See, I have great swathes of my life that I don’t really remember. The mundane things, the day trips to castles, the grocery shopping, passing my driving test….these things happened through a curtain. I could see, smell and taste. But I couldn’t engage properly. It means my recollection of these things is hazy. It’s why I’m in the habit of documenting life through photographs.

My grasp on what I actually look like hasn’t improved. I’m still surprised when I look in the mirror. I still see my self as that ugly sewer rat. I’m sure other people do too. I know, logically, that I’m perfectly average looking. But I can’t believe that. So I cover up the insecurity and low self esteem with makeup and bravado. It’s a tool in my armoury that gets me through.

My paranoia is at an all time low. Unless I miss a dose of the Quetiapine. Luckily, I have a close friend I can rely on to give it to me straight. She soon tells me if my reaction to a situation is within normal parameters or not.

My control over my emotions…well. I’m there. I’ve grasped it sort of. I know how to present a neutral face. I’m still the swan paddling furiously, serene to everyone but hectic underneath, and I still don’t have a homing beacon. But I’ve learnt to put a facade on. “If it’s not okay, it’s not the end”. I get described as “cold”. Which I’m fine with. I’m not. I’m about the most loving, spirited person I know. I’m legitimately batshit mental, I laugh so hard I cry, I get so angry I can’t see, I love so hard my heart hurts. But each, and every single time. “Are you ok” or variations there of, always, without fail get answered with “yeah I’m good thanks”. Because, not only do people not want the legitimate answer, but I don’t know how to give it. How do you respond to “are you ok” with “I’m seeing and tasting words, my thoughts are too loud and I’m over stimulated” which is what my “Im good thanks” translates to. You can’t. You can’t give people that answer.

Which brings me nicely to … yes, I still see words. I still taste them. I see sounds…not in the cool way with colours, but in shapes and patterns. Remember old alacetel phones? The ring tones on them were little red cuboids with rounded corners. Thursday still tastes of bacon.

My self esteem is largely the same. I still use bluff and bluster to get me through most situations. I have a telephone voice I use with nearly everyone. I still ignore most phonecalls. And most social situations. Unless it’s a random spur of the thing. I just can’t handle it.

So have I really come that far in two years? If I still avoid situations? If I still wake up screaming in the night? If I still feel like I’m on the waltzers and want to get off? If I still question everything…why did they say that, why did they look at me like that, are they laughing at me, what do they want from me? I still lie in bed and feel like the words in my thoughts are too loud  and too bright…like I’m hurtling head first into the back of a truck.

I have. I’ve come a long way. I’ve had a job for the last 18months, I’ve maintained a couple of friendships, I’ve helped people. I’ve been good and kind, just because I can. Not because I know it’s the normal thing to do. I’ve stopped getting stuck in the memories that I wish I could rip out of my mind and pour bleach onto.

But I’ve also become quite numb. Things that should devastate me…well I can switch off to them. That’s brilliant. I don’t obsess over the negative now. I’ve learnt that my emotions are fleeting. And something that hurts in that second, well, in the next second I’ll probably have moved on from it. Because thats what I do. Ultimately, afterall, BPD is defined by being unable to regulate emotions. Now I’ve learnt thats why I can’t…I’ve stopped hating myself for it. And instead I’ve educated myself on suitable responses to normal , everyday situations.

Have I forgiven the people that have contributed to making me this way? No. I never will. Have I forgotten them? No. Does it consume me still? No.

 

And thats that. That’s why whilst it doesn’t seem like I’ve come far…I have. I’ve come miles. I’m still on a journey with no destination….but now the journey isn’t horrible

 

 

It’s that time of year….how to get through it?

And so the season of enforced socialisation and merriment has rolled around again.

And there is a reason this is a difficult time of year for many, not just the depressed and the psychologically ill. We return home to our families, are put in situations which many find difficult and drink liquid depression and eat way to much.

Don’t get me wrong I absolutely love and adore Christmas and all it brings. But there are parts that I do find unendurable, and in past years have just dreaded. Luckily now as an adult I am in control of what Christmas entails, and I can partake (or not) as much as I want. But this isn’t about my love of tat and adorning my house with a large plastic plant covered in garish colours, gorging guilt free on chocolate and free things, this is about how to get through what is one large, glittered trigger. And get through with good grace and love for those I surround myself with.

So to any one who may stumble over this. Here’s to an action plan!

Firstly, if returning home to the family is one that fills you with dread, or even just a mild anxiety, then youre probably just like countless others. Returning home to the family is a misnomer. Look at is as visiting relations. There is this societal view that home is where we grew up surrounded by people attached to us by no more than shared genetics. I know for me, home is not where I grew up. Where I grew up is a place filled with unhappy memories, where I felt alone, its a permanent reminder of many things I’d rather forget. Home to me, is where my children, husband and friends are. So try this: accept that your family are your friends, not the people who you share DNA with. I have first hand experience of knowing that blood actually means sweet fuck all in the reality of life. Family should be the people with whom we share our joy and sadness, our fear and hope, and all those other emotions. Not the people who we are told they are. So your family are actually your friends, maybe even some of your bloodline. So in essence, your family are the people you choose to have around you, not the people whom you occasionally call out of duty, not out of choice. Home is where you are happy and secure. Where you feel you belong.

Secondly, don’t feel you have to partake in anything you don’t want to. For me personally, I don’t want to drink to excess, or have forced jollity, or watch crap t.v. I want to drink as and when I choose (this has been an issue in the past with people thinking I was being unsociable by not partaking) enjoy the bits I choose to (cooking for my family, presents with the children, cuddles with husband), seeing the family at times I choose for example, and watch good t.v (hello black mirror!) So decide what you want to do, and do it. Even if it’s just for half an hour a day, even just 30 minutes of doing what you want will help you keep a grasp on a good mental state. If that half an hour is just sitting in a dark room on your own thats OK!

Thirdly, look after yourself. This time of year we eat too much, of unhealthy food, sleep brokenly and too little and skip our routine. I know for me this is the hardest bit. I don’t cope with change or with broken routine. So I’m going to keep some routine. Just the bits I know I can manage, I’m going to take time to do my make up, I’m going to listen to music, paint my nails and eat something healthy at some point. This will help me keep my mind focussed and not drift off into the very very dangerous ether. Look after number 1 (or three in my case!) and take some time out to treat your body and mind well.

Thats it pretty much. Seems simple doesn’t it? But I’m not a qualified person. If times get really hard, contact the samaritans, reach out to someone. Even if just by text or email if you can’t face talking vocally. Don’t feel youre alone or stuck doing things you don’t want to do. You’re allowed to say no, and you’re allowed to not feel guilty.

Take care of yourselves. Be kind to yourself. And if you have to do something you really don’t want to do, to preserve the feelings of someone you genuinely care about, when it’s done come back and be extra kind to yourself and reach out to someone.