Tag Archives: BPD

Why don’t you all just fuck off?

Goady fucker aren’t I?

I’m not sure yet as to who exactly that is aimed at.

It might be aimed at the spectres in my dreams. The ones that are keeping me awake, yet asleep. The ones that have me dreading bed time, yet so exhausted I feel physically sick. The ones that make me relieve my worst memories, my darkest fears and my saddest moments.

It might be aimed at all the people making demands on my time, yet offering me nothing in return. Every relationship is transactional, and I’m beginning to feel the effects of the negative equity. It sucks to be honest.

It might be aimed at the people who have every right to make demands of me, the ones that offer me unwavering love and support, the ones I brought into the world, the ones who pay my wages. The ones I owe. The ones I want to be there for and to love and cherish…but the ones I end up fucking over…time  after time.

It might be aimed at the duo on my shoulder, known to me as rejection and loss. Some people have the devil and the angel. I don’t. My decisions are governed by my fear of rejection and loss.

It might be aimed at the racing thoughts, combined with the racing pulse. Culminating in the ultimate headache and body aches. That articulated truck just won’t fuck off and I really, really wish it would.

It’s definitely aimed at the people who wrote the first ten search results in my latest search for research on BPD.

Emotional vampire, empty martyr, cruel, abusive….all words used to describe people like me.

Even fucking worse was using the term “A Borderline” I am not a Borderline. I am not a fucking mental illness. I am a fucking person, with many many attributes. Call me a cunt, thats fine…I am one. A bitch….a daughter, a mother…etc I am all of these things. I am not a Borderline….anymore than I am the Loch Ness Fucking Monster.

I also wouldn’t say I’m an emotional vampire. If anything, I give off more emotions than I take in. I require a lot of maintenance, and I feed off peoples negativity, but no in a way that damages them. More in a way, that punishes myself. But if people around me are happy, then I’m happy. If people around me are sad, I find ways to alleviate that sadness for them, be it with bizarre riddles, hugs, presents…anything…I just want them to feel better.

I’m definitely not abusive. Not by any stretch of the imagination. I actively avoid confrontation, choosing instead to go without or be uncomfortable in order to avoid calling people out on their bad behavior. I spend my days building people up.

Yes, I can be cruel. Of course I am. By mere virtue of being human, the ability to be cruel comes with ease. But I genuinely don’t think cruelty is my first response, contrary to what google results would suggest.

I am screwed up. I do have a disproportionate negative view of myself. I do need to reengage with therapy. I do take a increasingly strong dosage of medication. I  do keep to the shadows. I do feel deeply. Love, happiness, hope…that stains me to my core. As does the darkness. I tiptoe and dance along a tightrope, never sure which side I’m going to come crashing down on. But it’s my dance and my tightrope. I own that. I find happiness in the smallest of things, I find joy in nothing more strenuous than a rainbow. I find peace in being by the sea….

I am not this carcrash of a human, waiting to hurt and destroy people. I am not this person to be avoided because of fear of me somehow infecting you with my, frankly, bizarre views.

I am messed up, I don’t see myself the way others see me. I don’t see the world in ways other people do. I’m not jaded or full of cynicism. I’m the eternal optimist. Because I have to be. I’ve experienced the worst of what the world has to offer. I’ve been the domestic abuse victim. I’ve been the sexual abuse victim. I’ve been the one who reached out to tell my story, and get the support I needed so badly….and found that there was none when I needed it. Yet still, I look around me and see the goodness in people. See the kindness. Offer my support, my help….when many others would have already turned their backs. I give that second, third and fourth chance.

So why exactly, am I lumped in with the dregs of society? The ones who take out more than they give back…the ones who won’t help themselves let alone other people?

I have fought, endlessly, tirelessly, relentlessly….

I have fought other people. I have fought the system. I have fought myself. I have fought for other people.

And because whilst I have BPD  and goddamn am I aware of that… it’s not all I am. My paranoia, my weird tangenty thoughts, my cyclical moods, my lack of “emotional regulation”, my fear of rejection and loss, my love, my hope, my whimsy….they’re all just facets of who I am.

I am not a borderline. I am not an abuser.

I’m just me….weird, crazy, ugly little me.

If that isn’t enough. If you will still insist on my changing…this is my invitation to you…

Go, and don’t come back. I do not have time or inclination for anyone who doesn’t accept who I am. I do not have time, or patience to convince you that I am worthy. How can I, when I still have to convince myself of that every day.

I do have time to reeducate. I have time to fight for the cause. To fight for people to actually understand mental health, genuinely understand it.

I do not have time to explain, again, that I do not have depression. That I’m not “going through a phase” (it’s been 20 years…I’m fairly sure this is who I am). I do not have time to convince you of what I can’t begin to explain adequately.

But, I will, always, have time to listen and to love. Because that’s who I am.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

time I wake up?

 

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This kid’s not alright.

So young. Sat on a bench, her short legs just hanging there listlessly, unable to reach the ground. But without engergy enough to swing. Her scuffed shoes just there. 

All encompassing, pervading every facet of my being. Darker than the blackest black. The stuff emo kids can only dream off. So thick it’s a relative forcefield around me. Ironically the one thing keeping me together was the same thing that was destroying me.

Loneliness.

Not the kind that a text from a friend, or a smile from a stranger can help stave off. But the kind where you know you’ll never be free of it. The type where you’re surrounded by people, quite literally, but no one can reach you and, most crucially, you can’t reach any one.

It’s only now, in my stronger self, with my new learnt techniques and medication, that I can look back on my darker times and start pinpointing what the emotions I had were.  I can identify fear well now, that was an emotion I only really felt in my mid to late teens, other periods of my  life seem to be conspicuous in the absence of fear. Sadness, I was never sad, I was always…..melancholy. Sad implies a cause and therefore a solution. Acceptance, not from people, or even myself, but acceptance of the way I was/am (interchangeable at times). Etcetera…I felt happy at times…like on journeys with my step dad to watch the football, or getting a good mark on a piece of work I’d really worked on, or when I completed prose that I felt told the story….

I’m painting the picture of a very unhappy child, but I wasn’t. I was certainly grumpy or crabby or mardy. Now it’s pretty obvious that actually it could have all been avoided pretty easily.

No, I wasn’t unhappy. That darkness I was speaking of? That’s loneliness.

It is only with time and hindsight I have learnt that. It’s still something I battle with now. Which is tedious given the fact from the minute I wake til the minute I sleep I’m with people. And even when asleep, I’m not alone. I’ve got the good old night mares to keep me company.

We all know my back story, I’m 27, had 5 different psychiatrists, 6 different counsellors, 3 psychologists, 2 overdoses, 5 different anti-depressants, 2 anti-anxiety drugs, and now a lovely cocktail of happy pills and none crazy pills, 4 diagnosis’ (Depression, General Anxiety Disorder, Chronic  Anxiety and now Borderline Personality disorder with an addition of dissociative and schizophrenia behaviours thrown in for good measure).

So what does that have to do with the price of fish?

Simple really. As a child, I couldn’t name my emotions. I didn’t understand them. Even now as an adult, I have to focus to see what the cause behind the emotion is. I mean, happiness is easy to determine, as is melancholy. But anything beyond those two, well thats harder. I feel anger, immense anger. But only temporarily, very fleetingly. The only emotions that seem to take hold and stay are loneliness and melancholy.

But admitting to that, isn’t allowed. How can I be lonely when I’m married and surrounded by friends?

Well I’ve figured it out now.

How can you not be lonely, when you don’t like being alone?

Which sounds absurd, because I love alone time. But never silence. I can’t sit in silence. Which is difficult, because too much noise overstimulates me and makes me cranky. But when I’m alone, I have to have music. Always music. It acts as a dampener to my thoughts. I can’t think too much when I’m concentrating on lyrics can I?

I know I’m not the only one who struggles with this. Loads of people can identify with the feeling of being alone when at a party.

My problem is, I can’t take being alone for what it is.

I have to over analyse. I have to over think. The ball of neuroris that is my brain can’t tolerate too long without input from other sources. Otherwise it takes off at a tangent and colours everything green.

Remember, everything has a taste, colour or sound. Thursdays taste of bacon, my teeth itch, lonliness is green.

Back to that kid. That young girl on the bench in her playground. She was eight. Eight. One year younger than my eldest is now. I still remember it. Clearly. As if it was frozen in time, an image I get to replay every day. That young kid. She wanted it all to stop. All to go away.  Her heart hurt, her brain hurt. All she wanted was for it to stop. To stop and end for ever ever.

See, I’ve been battling this for longer than I can’t remember.

I’m okay now. But acutely aware of the fact I’m still in this war of attrition. Knowing that I’m only okay because my medication stop me being anything else. Knowing that too long without the tablets and it all comes back. Knowing that I still don’t have the energy to fight it again. Not yet. I don’t think I ever will.

I don’t have the energy to fight and still be a good mother. To fight and still be a good friend. A good wife. A good person.

But that’s fine. At least I’m honest about my crutch. I’m honest that I need the pills. I’m all talked out. All lessons learnt. All opposing thoughts done. I’ve done the years of therapy, and psychiatry. Time served. I’ve spent over half my life in therapy. Therapy can’t change who I am.

And I am that neurotic mess who hides behind a face of makeup, hard walls, sarcasm and apathy. I am that person who will say something cutting just because she can. I am that person who will always be there for my friends. I am that person who will burst into tears because her hot bread has been toasted too much. I am that person who will learn, learn and learn some more. I will set myself unachievable targets and hate myself for failing. I will always be my harshest critic. I will always be battling my own brain.

Because I have no choice. I can’t be anything but who I am. I can’t be that happy, easy going person I want to be. I can’t wake up in a good mood when I’m coming round from a drug induced sleep. I can’t be that person who always has a kind word. I can’t be that person that other people gravitate to, because she makes them feel good.

 

I’ll forever be that person, that makes most people feel slightly uncomfortable, despite them not even knowing why. I’ll forever be that person who’s more spikey than cuddly. I’ll always be that person, who people think is joking because no one can be that mean.

But, I’ll also always be that person, who is the first to help. The first to offer solace and comfort. The first to empathise. The first, and last, to stop caring.

Me and my resting bitch face, may be unapproachable. We may make people feel uncomfortable.

 

But, something I’ve learnt over the years? That’s usually because in me, they see parts of themselves they don’t like. They see in me, the chance of the battle they will have to face. And no one likes that. No one wants to admit that mental health illness can, and will, attack anyone. They want to think its only the weak. It’s only the lazy.

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And in me, they see that unfortunately, its indiscriminate. It will take anyone it desires. It will render even the strongest, warmest, move loving of people. And turn them into a shell. It will make them feel that lonliness I live with. It will make them feel like no one around them wants them or needs them. It will twist your own brain so much you can’t trust it. So by extension, you don’t trust anyone.

 

 

Oh. And I’m a total bitch…..

B.P.D; a journey without a destination.

1 year on from my first diagnosis. Not of my life, prior to this correct diagnosis I’ve been given: Depressed, General Anxiety Disorder, Attention Seeking, Crazy, Nut Job, Over sensitive, Loser…..Most of which any one on the journey of mental health improvement have probably been given themselves.

So one year on, a lot happens in a year.

I detoxed off Venlafaxine (I’ll describe this in detail!), changed my medication, increased my medication, attended work shops, and the most important thing? I’ve educated myself and accepted it.

So, detoxing from Venlafaxine…..easily the hardest thing I have ever done. My first obstacle was trying to convince my first psychiatrist that it does have withdrawal effects. Over the course of time of my being on Venlafaxine, 2 years (I finally made it to this horror of a medication after playing with Fluoxetine – HAYLO crazy dreams and insomnia! Sertraline, gee thanks for the hives, Citalopram, useless and I just slept constantly, amitryptaline can’t say I took it long enough to notice any significant benefits) I learnt to never miss a dose. I always knew I had when the dizziness started, a not the kind of dizzy you get from spinning in circles, more a slow motion dizzy, I’d move my eyes from something and two seconds later my mind would adjust to what I was seeing. But as time went on, I was having to take my doses earlier and earlier, and I was on the full, maximum dose of the stuff, but the withdrawal was starting within 12 hours, then 11, then 10……Pharmacists and doctors laughed me out the room when I tried asking for help, I remember sitting in my doctors room crying because of how awful I felt and he just said “that’s not possible”) Well thanks to google I soon learnt that I wasn’t abnormal, this was happening to thousands of people across the world. In November 2014, I went cold turkey….my doctor refused to prescribe me it, and I didn’t see my psychiatrist for another 4 days when I ran out….

Day one.

The dizziness started. It felt like my eyes were moving too quick for my mind to keep up, and eveything was sliding into place in stead of clicking. I got irritable, and shaky. Nausea started. I was over emotional, crying at almost everything. And the ranges in my temperature were amazing.

Day two.

New symptoms met the existing ones. Static shocks to my brain, the only way I can describe that periodic zap that went over my brain, sometimes it even made me wince with pain. The nausea got worse. Heart palpitations. Constantly cold. Week as a kitten, could barely walk. I have literally never felt so ill. I think at this point my husband got really worried for my mental health. I dont remember any thing apart from the symptoms. Not what I was wearing, what I did. I tried to counteract the worst of the symptoms by taking a citrizine based anti-histamine as recommended by fellow sufferers. It worked slightly, I could keep food down.

Day three.

The current side effects weren’t enough apparently. Lets add agonising pain and noticeable random twitching. I wish that was a joke, I’d sit there watching t.v. or talking to a friend and randomly twitch, and it wasn’t small, I scalded myself with tea twice. My brain became so foggy, articulation was difficult and upsetting. My heart was hammering that hard in my chest I thought I’d be sick. It actually hurt. I cried and begged for relief. It was … beyond horrible. I really wouldn’t wish that on my worst enemy.

Day four.

I saw my psychiatrist for my new medication. I literally curled into a ball in the bucket seat as they spoke to me. The look of horror on the face of the consultant psychiatrist, registrar psychiatrist and counsellor were plain to see when I said I’d been cold turkey…..the psychiatrist wrote his own letter of complaint to my doctors about them stopping the medication. He put me back on 150mg to wean to zero over six weeks. I was glad. Another day like that and I genuinely don’t know how it would have ended. Hospitalization probably, I was a danger to myself. Thank god for good friends who helped me mother my children.

So when I finally detoxed, after the six week course of ever decreasing doses, it still wasn’t easy. It was still one of the hardest few days of my life…..but I was damn glad I’d done it. I’d rather be sectioned than ever have to put that detestable “medication” in my body again.

Then came the new medication. Having tried to manage my condition by myself in earlier years and it not being very successful (two overdose attempts – serious not cry for help) years of self harm, so bad it had become habitual, I know medication is the only way I’ll ever manage this. So to help with my sleep, anxiety, racing thoughts, dis associative tendencies and the whole shebang I was given a new antidepressant, an SSRI instead of an SNRI (I’ve also been on tri-cyclic) and an anti-psychotic, to help stabilise my moods.

2 months on, I can say that they seem to be better. My memory is back, I’m not having those horrendous dreams I used to have, I also practised immersion therapy to help with this, I can feel a range of emotions again, I laugh and feel happy, my vision is clearer, I had perfect eye sight (wahoo! go me!) but everything sees brighter and clearer now, I can focus on one thing at a time, I feel more connected to the world. But I’m also more irritable and cranky, and paranoid (of bizarre things, like my phone being tracked and hacked). Symptoms of my illness, and also just who I am, I’ll discuss this with my psychiatrist, becuase there is scope to increase my medication further, and I know that if it is then those awful parts will go and I’ll be a nicer person again. I’ve also regained my wit, sarcasm, and judgement. I’m no longer in this quagmire of life, just plugging away.

A year on from my diagnosis I can actively engage again, caused the loss of a few “friendships”  because I finally saw them for what they were, acceptance of my illness, and I’m no longer looking for a way to “cure” myself. I finally accept that it’s who I am, without it I wouldn’t be…me. And I’ve lived with it that long (I first remember the desire for my life to end at 8) I don’t know who I am without it, it’s a core part of who I am. And that’s fine. What isn’t fine, is allowing the negative side of it to overpower the positive. Which is what was happening. It’s okay to be ill ya know, but it’s not okay to not seek help. One year on I’m happier, more confident, more accepting, generally a better person than I’ve ever been. My uni work is excelling my own expectations, my brain is firing on all cylinders, I’m proactive in my health and fitness, I’m hungry again. Not for food (well yes that too, cheers quietepine! and my need for sweet stuff lol), but for experience, and knowledge. I can’t learn enough now, or pass that knowledge on. My love of cooking is back, and playing with my children. The best parts of me are back.

So this is probably the last time I’ll talk about my illness. Perhaps not, I might have a relapse, and might have dark times again. But hopefully this is the last time.

But I want everyone to know that mental health illness, isn’t the end of life. Whilst with my particular one there is no cure, no end to it, it’s always there on the fringes, or “in remission”, it’s no longer my ruler, my controller. I now control it. And everyone else can theirs. There is always help there for those who need it. There is always recovery as an option. And one, two, three etc, relapses don’t mean you’re beaten. You’re down but you’re not out.

So if you’re struggling at the moment, remember talk to your support team, that’s your friends, family and doctors. If you’ve not sorted a support team yet? Then do it now. Not tomorrow. Now. Because without them, you won’t and can’t succeed, but with? Hell yeah, nothing can stop you.

Thanks for being here for me, I’m glad I’ve got this far, and I know, without a doubt, that I have the ability to control this, regardless of what life throws at me.

BPD; A journey without a destination. The truest words I’ve said about it. There is no destination, no end to it, but it’s a journey I’m on, and engaged with, and instead of being a passenger on this journey. I’m the driver.

And it feels good.